CF Referral Center Online Privacy Policy Statement

Any person accessing, browsing, or otherwise using the CF Referral Center for Susceptibility & Synergy Studies Web Site http://synergy.columbia.edu ("Synergy Lab Web Site") or World Wide Web Cystic Fibrosis Synergy Data Center https://synergy.columbia.edu ("Synergy Lab Web Site") either manually or via an automated device or program, to the extent permitted hereunder, shall be considered a "User" under this privacy policy. All Users are bound by the terms of this privacy policy. The CF Referral Center is committed to protecting the privacy of our Users. This privacy policy discloses the privacy practices governing the use of information submitted to the CF Referral Center through the Synergy Lab Web Site. Capitalized terms shall have the meaning designated in this privacy policy.

INFORMATION WE COLLECT

Anonymous Browsing Information
You can browse the Synergy Lab Web Site without revealing personal information that can be used to identify you. The CF Referral Center may collect non-personal information such as your Internet Protocol ("IP") address, the name of the domain you used to access the Internet, the web site you came from and the web site you visit next (see "How We Use It," below). However, the CF Referral Center does not associate any non-personal information with records containing any personal information submitted to us, so you remain anonymous when you browse the Synergy Lab Web Site.

Cookies
The Synergy Lab Web Site uses cookies. A cookie is a small file that your Web browser places on your computer's hard drive. It functions as an identification card, recording your passwords, purchases and preferences. Most browsers are initially set to accept cookies. You can set your browser to notify you when you receive a cookie, giving you a chance to decide whether or not to accept it. While the CF Referral Center uses cookies to track your visit to the Synergy Lab Web Site our servers automatically log the IP address of your computer, this information does not identify you personally and you remain anonymous, even if you have previously submitted personal information to the CF Referral Center through the Synergy Lab Web Site or otherwise.

Sponsors, partners or other third parties whose web sites are accessible through links on the Synergy Lab Web Site may also use their own cookies when you link to their site or service. The CF Referral Center does not control these third parties' use of cookies and cannot guarantee that they will uphold the same privacy standards as the CF Referral Center. The CF Referral Center expressly disclaims any and all liability related to the collection, use or disclosure of information by third parties. You should review the privacy policies of any third party site that you visit through a link from the CF Referral Center Synergy Lab Web Site to understand how they use cookies and the information they collect through cookies.

The CF Referral Center uses contact information collected from Users, such as names and e-mail addresses, to respond to User inquires, to process User applications for grants, subsidies, scholarships or participation in the CF Referral Center programs, to process User donations, to help organize fund-raising events, and to inform Users of new programs and services.

Unless we have your consent or except as required by law, the CF Referral Center will not share your contact information with any person or entity other than those affiliated with the CF Referral Center, entities acting on behalf of the CF Referral Center and relevant third parties such as the CF Foundation and the CF Referral Center program participants and sponsors. By submitting contact information through the Synergy Lab Web Site, you authorize the CF Referral Center to share this de-identified, aggregate information for the purposes of determining qualifications for grants, subsidies or scholarships, organizing fund-raising events, responding to User inquiries, processing donations, or determining eligibility for the CF Referral Center programs.

Because we are committed to protecting your privacy, personal information that is submitted to the Synergy Lab Web Site will be collected, processed, stored, disclosed and disposed of in accordance with applicable U.S. law. If you are a non-U.S. user, you acknowledge and agree that we may collect and use your personal data and disclose it to other entities, as discussed above in "Whom Do We Share This Information With ," outside your resident jurisdiction. In addition, such personal information may be stored on servers located outside your resident jurisdiction. U.S. law may not provide the degree of protection for personal information that is available in other countries. By providing us with your personal information, you acknowledge that your have read this privacy policy, understand it, agree to its terms and consent to the transfer of such information outside your resident jurisdiction. If you do not consent to the terms of this privacy policy, please do not use the Synergy Lab Web Site, but if you have already provided us with personal information, please contact us at the CF Referral Center for Susceptibility and Synergy Studies, Columbia University, 650 West 168^th Street, Black Building 4-413, New York, NY 10032, Attn: Laboratory Supervisor, or send an e-mail to synergy@columbia.edu and let us know how you would like us to handle such information.

Should your contact information need to be reviewed, corrected, or deleted please submit your changes to the CF Referral Center for Susceptibility and Synergy Studies, Columbia University, 650 West 168^th Street, Black Building 4-413, New York, NY 10032, Attn: Systems Analyst, or send an e-mail to synergy@columbia.edu.

The Synergy Lab Web Site has security measures in place to protect against the loss, misuse and alteration of information under our control. However, we cannot guarantee that such security measures will be sufficient, will not be breached, and that your personal information may not be disclosed or otherwise accessed in an unauthorized manner. Certain information may be transmitted to you by electronic mail. Although it is illegal to intercept or disclose these messages under Federal law, these transmissions are not 100% secure.